Ocular melanoma: Saving lives, saving eyes

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Welcome to the discussion.

1 comment:

  • Campbell 760 posted at 8:11 pm on Tue, Mar 18, 2014.

    Campbell 760 Posts: 1

    I spent 2 years researching this disease in support of my best friend who finally lost her battle in 2012 and this article does not present the whole picture.
    50% of the patients treated for a primary eye tumor will develop metastases; for the other half they have a "cure."
    Metastases can occur simultaneously with the primary, in 2-7 years or not for 20-30 years.
    Every patient should be told they need to be checked twice a year for metastases which appear first in the liver 96% of the time.
    Some doctors and HMO's refuse to treat patients since there is no cure for metastases.
    There are however, numerous, treatments that sustain and prolong life. Best source for more information is Thomas Jefferson University where the greatest research is conducted. There are list serves where patients can learn about the disease.

     

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